Who are we?
Ariel and Enrique Nájera the reason behind this foundation.
We are a blended family and together we have 4 kids, Lulu 23 yrs old, Rebekah 9, Ariel and Enrique
(fraternal twins, also 9 yrs old, both diagnosed with Duchenne Muscular Dystrophy since 2016 ), since our journey in search of the best possibilities for our boys we noticed a lack of information and support to low-income families and language barriers. With our background in the marketing and entertainment field, we are determined to create the first bilingual web site specialized in Duchenne Muscular Dystrophy where you will find all kinds of information and developments of the disease in Spanish & English.
We are a 501c3 non-profit organization.
Luisa Leal & Jorge Najera
Founder of The Akari Foundation.